Beautiful 16-Year-Old Ukrainian Girl with Disproportionately Long Neck Teaches Internet About Marfan Syndrome

The girl to the far right in the photo above is Lyudmila Titchenkova, a 16-year-old living in the city of Nikolaev, Ukraine.

After she turned 10, Lyudmila’s parents noticed that their daughter’s body began developing at an accelerated growth rate. She was taller and had longer arms than other children her age, but of particular concern was the length of her neck and abnormal curvature of her spine.

As it got to the point where Lyudmila began feeling embarrassed to go out because of her appearance, her parents took her to the hospital, where she was diagnosed with Marfan Syndrome, a rare genetic disorder of the connective tissue that can affect many parts of the body, most often the heart, blood vessels, bones, joints and eyes.

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